Things are good…really, really, really good. Joey is almost 4.5 years old. He is in preschool 5 mornings per week. He is fully engaged, active, verbal, stubborn, adorable, sometimes fresh!, loves to wrestle w/ Daddy, cuddle and read w/ Mommy and play princesses and firemen w/ his sissy! He is FULLY potty trained. Wakes [...]
Our little guy is pooping again. He’s had a foot fungus thing going on for a few months now. There is a school of thought that if there is an external fungal expression, that there could be an internal fungal imbalance going on too. I’ll update this post soon with what medication he has been taking.
After 8 weeks of not pooping on his own we have resumed an ‘aggressive’ poop schedule! I cannot believe that after 8 weeks of on/off entero and of his system shutting down he is now pooping again. WOW! I didn’t want to post until I was pretty certain that we had turned a corner. Last [...]
YAH…his poops are getting bigger (HUGE) and slowing down to 3-4x per day………….oh my goodness. THIS IS AN AWESOME, INCREDIBLE ACCOMPLISHMENT for our HD baby!!!!!!!!!!!!!!!!! YAH YAH YAH. It is not happening every single day, but it has been about two weeks of great slow down. YIPPPEEE!
So our pooping slow down turned into a pooping STOP. So we had almost a week of daily enemas to keep JC cleaned out. Poor little man HATES them and we HATE giving them to him. It takes the two of us to hold him down and then it takes 45-60 min of naked time [...]
WOW! What a year…it has been a few days of reflection for me and ALOT of happy tears. One year ago we were waiting for diagnosis and I was being discharged from the hospital and begging the midwives to come up w/ some way to let me stay admitted so I could remain in the [...]
Joey Cooper is doing so so so so great! He saw the local surgeon at end of Sept and we were told we did not have to dilate anymore….BUT when we spoke w/ our Cincinnati surgeon he recommended weaning him off the dilator- which will take another few months. So we still dilate, now down [...]
Today was a little rough as Joe made me leave and take a break from the hospital (and to have a little Ella time- which was AWESOME!) BUT of course on the day I decide to leave Joey Coop has some bouts of throwing up. So they ordered an xray to make sure no blockage [...]