One year post pull through!

We have made it to the one year mark!!!! YIPPPEEEE!!! I cannot believe it has been a year since our journey out to Cincinnati for Joey Coop’s pull through surgery. It has been a long road but all and all he is doing so well. I cannot believe it!!!!

My boy is so strong and brave. He has been through so much in his 17 months and we are so proud of him.
He is pooping regularly and still a bit to much but it has slowed down. He has a tight sphincter so we are back to dilating 1x per day. The rash comes and goes and we are still battling it and trying to keep it at bay.

He has hit all his milestone on time or early. He is talking, running, climbing, trying to eat w/ utensils, gaining weight and doing GREAT! Again…so proud of him.

So thankful to all my friends who have been there w/ their shoulders ready for me to cry on…and there has been quite a bit of crying over the past year. Thankful to my family who has helped take care of Ella when I am going back and forth to dr. appt’s, hospital visits. Thankful to the Yahoo HD board for all their advice and support. Thankful to all of the wonderful HD families I have ‘met’ (mostly online) for their support and kind words and understanding.

We are blessed with two wonderful kids who bring us so much joy. What a day! Congrats Joey Cooper! Love you xoxoxoxoxoxoxoxox

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