Today I got a phone call from an HD Mama from Texas. Her two year old is struggling w/ not pooping. Her GI’s are pushing Miralax. All and all she is having a really tough time, not only w/ the daily STRUGGLES of HD but w/ the emotional component. In talking to her I remembered, vividly, how hard each and every day was. I was working very p/t during everything and I would wait for those days and I would have my breakdowns in the car, by myself while I drove to and from client’s homes. It was such a hard time. Every single irrigation brought hope….”I really cleaned him out,.”, I would say to husband. ” I am SURE this one did the trick, he is going to start pooping on his own.”……most times this wasn’t the case. Occasionally he would start pooping on his own and we would get a few peaceful days of respite. No irrigations, no hearing our son SCREAM for us to stop while we pushed a tube in and out of his bottom for 45-60 min, no cleaning up the inevitable poop all over the bathroom and doing loads and loads of dirty laundry. Those were the days…and then inevitably the poop would stop after a day or two or five and we would start all over again. More irrigations, more hoping for a break, more prayers, more tears, more exhaustion.
I THOUGHT IT WOULD NEVER EVER END.
and then it did……….
and now our son is five and is potty trained. We can go out to dinner w/out having to run home for irrigation. We can go on vacation and he can poop in a public bathroom. We can plan a day out and it does not have to revolve around being home for a second and third irrigation of the day. We still think about and talk about poop every day, but it no longer rules our life.
IT GETS BETTER….. I PROMISE
Please comment….especially your stories of hope. Talking to this Mom today brought tears to my eyes and brought me right back. I know exactly how she is feeling and if we can all send her a little HOPE and some virtual ((((HUGS))))) I am sure it would help.
thanks for reading.