finally…botox tomorrow
Dealing w/ major head colds has delayed the Botox twice. We are scheduled for tomorrow. I have so much HOPE in my heart that this will work and give my little love some relief. Please please please let it work. Nervous and scared but hopeful!
Botox
We decided to give botox a try. I upped his senna again to two strips (or approx 17 mg) per day and still nothing. He complains every day that his belly button hurts and his poopy hurts. His appetite goes from good to bad as his colon fills up w/ poop and he gets really […]
January 2011
So poop resumed in early December 2010 and it was a very on/off month. We had to do some irrigations around Xmas and then again around New Years and then things stopped again in mid-January. Joey had an upper GI done and all results came back normal. Ella (his big sis) got a terrible stomach […]
10/28/10-12/3/10
He stopped pooping AGAIN. We immediately start flagyl irrigations for about five days. We then stop the flagyl and just continue w/ irrigations. Enema’s don’t work, we get no return and then have to insert the irr. catheter to clear him. Xrays come back fine. We try upping his senna and that just causes vomiting. […]
POOP!!!!!!!!!!!!!!!!!!!!!!
After 8 weeks of not pooping on his own we have resumed an ‘aggressive’ poop schedule! I cannot believe that after 8 weeks of on/off entero and of his system shutting down he is now pooping again. WOW! I didn’t want to post until I was pretty certain that we had turned a corner. Last […]
six weeks of hell and counting
We have been to the ER twice. We have been giving enema’s, suppositories, or irrigations depending on JC’s status. We have been through maybe two bouts w/ enteroc…or it never really was gone after the first oral course of flagyl. We had to do irrigations w/ Flagyl 3x per day for a while, then weaned […]
enterocolitis
So last Thursday Joey Coop’s belly starts LOUD rumbling (pooping fine). Friday he seems better, pooping fine but late afternoon vomiting begins and lasts on/off for a few hrs. By Saturday he has stopped pooping. Sunday = enema that does not really pass much so irrigation. We see surgeon on Monday who thinks he just […]
One year surgical check up
All went really well at our check up. JC’s sphincter is still tight so we will continue to dilate and consult w/ our Cinci surgeon on how/when to start the weaning process again. Since we resumed daily dilation Joey Cooper has been sleeping through the night almost every night (YIPPPEEE!) so it is obviously helping […]
One year post pull through!
We have made it to the one year mark!!!! YIPPPEEEE!!! I cannot believe it has been a year since our journey out to Cincinnati for Joey Coop’s pull through surgery. It has been a long road but all and all he is doing so well. I cannot believe it!!!! My boy is so strong and […]
tight sphincter, back to dilation
Our nights have gotten so so so bad. Joey Cooper calling out for me every 10-20 min, crying, moaning, obviously uncomfortable/in pain. Nothing we do seems to help, and we have tried everything….so a trip to the surgeon. It brings us some relief, because we get an answer as to why he is so uncomfie. […]
Recent Comments