Went down to CHOP yesterday. Long story short they said I shouldn’t be to worried about the nodule. It is very very small and does not look suspicious. They took some blood to test his thyroid function. Dr. is also contacting a colleague down at Johns Hopkins who specializes in MEN 2a and will touch base w/ her regarding Joey’s specific RET mutation. We will go back in a year to do another u/s and blood to make sure nothing is changing/growing. With two doctors telling us to wait and watch that is what we will do now.
We are focusing now on where Joey is. FULLY trained. Pooping like a SUPER STAR. In school five mornings a week. Sleeping, restfully through the night. Growing, singing, laughing, pooping, talking, pooping, running, pooping, throwing fits, pooping…..doing great. (This is all 9 months post Botox #2, NINE months irrigation free, NINE MONTHS!!!!!!!!!!!!!!!!!!!!!)