Cincinnati Childrens Hospital

Dr. Marc Levitt is leaving Cincinnati Children’s Hospital

Hirschsprungs Disease News: I received an email from Dr. Levitt today.  It’s sad news for the folks at Cincinnati Children’s but it’s good news for those little ones who are suffering form colo-rectal issues. Dr. Marc Levitt is moving to Nationwide Children’s Hospital in Columbus.  He stated that… “it will be an incredible opportunity, to help […]

Christmas gifts for kids at Cincinnati Children’s Hospital

My co-worker has been sending an email around for a few years with a request to donate gifts to hospitals.  There is practically no overhead with this charity.  You buy the toys from Amazon and they ship direct to the hospital.  If you spend more than $25 for most items, you get free shipping I know that […]

One year surgical check up

All went really well at our check up. JC’s sphincter is still tight so we will continue to dilate and consult w/ our Cinci surgeon on how/when to start the weaning process again. Since we resumed daily dilation Joey Cooper has been sleeping through the night almost every night (YIPPPEEE!) so it is obviously helping […]

4 month post-op

Joey Cooper is doing so so so so great! He saw the local surgeon at end of Sept and we were told we did not have to dilate anymore….BUT when we spoke w/ our Cincinnati surgeon he recommended weaning him off the dilator- which will take another few months. So we still dilate, now down […]

Day 2 in pics & video

We got some outside time today (believe it or not).  The fresh air was great and it knocked the groggiesness out of our little guy.  Ella Sophia ran around in circles and had fun too.   Here is our little guy shortly after the outside adventure and right after the nurses took that not-so-fun tube […]

post-op day 2

Had a great night last night. Joey Coop slept for us and all of his monitors cooperated and did not make too much noise. He is on new pain meds and they are still causing some itching so we have meds that help to lessen the itch! Today he will be taken off ng tube […]

forgot to mention…surgery went AWESOME

he did GREAT in surgery.  It only lasted 3 hrs or so.  It went exactly as it was supposed to w/ no complications.  The patholgist confirmed that it is only 30% affected- so that 30% of colon is gone and his ostomy was pulled down and re-attached to rectum/anus.  His colon, which usually looks sort […]