saccharomyces boulardii

S. boulardii is one of the supplements Joey takes daily. We recently increased his dosage after he started suffering from very very watery poop following/during a head cold. His poop turned to completely to dirty water on day 2-3 of a cold. He takes this ‘healthy yeast’ daily (2 capsules per day emptied into applesauce). [...]

Stomach bug

We all got the dreaded stomach bug over New Years. I am very very very happy to report that allthough Joey did get sick (vomitting) he had NO HD flare-ups at all. He stopped pooping for a day, but that was because we didnt eat for 24 hours or so. He got better after 24 [...]

there is HOPE….

Today I got a phone call from an HD Mama from Texas. Her two year old is struggling w/ not pooping. Her GI’s are pushing Miralax. All and all she is having a really tough time, not only w/ the daily STRUGGLES of HD but w/ the emotional component. In talking to her I remembered, [...]

One year irrigation free + stomach bug + Happy Birthday Joey

We made it ONE YEAR irrigation free. I’m so amazed. Every single December has been a struggle for Joey and I can list the things that happened each and every Dec since he was born on 2008. I dont have a great memory but when it comes to HD my mind remembers it all. Last [...]

Daily Hirschsprung’s Story

This is  a blog where you can view recent info about HD.

Dr. Marc Levitt is leaving Cincinnati Children’s Hospital

Hirschsprungs Disease News: I received an email from Dr. Levitt today.  It’s sad news for the folks at Cincinnati Children’s but it’s good news for those little ones who are suffering form colo-rectal issues. Dr. Marc Levitt is moving to Nationwide Children’s Hospital in Columbus.  He stated that… “it will be an incredible opportunity, to help [...]

Doing GREAT!

Joey is doing great! Pooping so well. Gaining weight, growing, doing well in school, making friends, playing soccer, talking, dancing, eating. We are so happy and so grateful for every single normal day. There isn’t a day that goes by that we don’t thank god for poop and pray for continued poop. We still watch [...]

Disney w/ our HD friends!

Sarah and I ‘met’ online when Joey was a few mos old. We were planning our trip to Cinci for p/t, she was planning her trip to Cinci for her then 2 yr old to be seen by Levitt for consult ( he was having problems w/ Soave p/t cuff issue). We were going to [...]

Such kind words from another HD family

Attention Hirschsprungs Disease families.  You are not alone.  We were fortunate enough to meet with another family who has a boy with HD.  Our respective wives had become close friends thanks to the internet and Facebook. We met in the place of all places, Disneyland in Orlando.  Here is a link to Keaton’s Blog: Eat, [...]

Here is our little guy enjoying some California rolls.  We keep raw tuna out of his diet, but his normal go to meal is chicken teriyaki.