Things are good…really, really, really good. Joey is almost 4.5 years old. He is in preschool 5 mornings per week. He is fully engaged, active, verbal, stubborn, adorable, sometimes fresh!, loves to wrestle w/ Daddy, cuddle and read w/ Mommy and play princesses and firemen w/ his sissy! He is FULLY potty trained. Wakes up in the morning w/ clean underwear. We are blessed! exactly four years ago today he went in for pull through surgery w/ Dr Levitt at Cinci Childrens.
We are very very careful w/ his diet, water intake and routine. When our days are too long or he misses time on his home potty then things may get a little off track. He eats a very clean, fresh diet. Whole grains (no white rice, bread, etc), fruit at every meal, veggies at lunch and dinner. Beans, lentils, yogurt (w no added sugar preservatives), kefir. He eats chicken, salmon, and ground beef but I only cook w/ meat 1-2x per week, the rest of the weeks dinners are vegetarian. I always look at fiber amount on labels and aim to buy bread, cereal, pasta that has 5+ g fiber per serving. My goal is 5 g fiber per meal. We try and avoid food coloring, preservatives and added sugar as much as possible. We have found some foods are hard for him to digest so we avoid those foods or alter them. For instance he can have nut butter (no crunch) or nut flour ( I grind almonds into almond meal) but he cannot have actual nut pieces. He does OK w/ skin on an apple but not the skin of blueberry or pea (weird!). So he knows he has a special diet and he is very good at school at avoiding things like raisins, grapes and other foods that have stopped the poop in the past. I think this summer I will reintro peas and blueberry and see how he does.
Our local surgeon told me 32 oz of water a day. WOW, we were not even close to meeting that goal so I started adding 1-2 tbs of juice to his 8-12 oz of water and it helps. Now he gets approx 24 oz water each day and I hope all the fruit/veg make up for the 8 oz we are missing. On busy, hot or fussy days- when he doesn’t or wont- drink his water I will let him have juice box (just one, low sugar, no added ‘stuff’).
He has been on Klaire Therabiotic Complete probiotic since 4 weks old (he started on infant formula till 2yrs, now he is on adult formula). He gets 1/2-3/4 teasp per day. he also gets 2 capsules of S. boulardii each day. Vitamin D, multi vitamin, DHA are his other daily supplements.
Natural Calm magnesium is a great help when he is having trouble pooping. He gets this pretty infrequently but we always have it w/ us just in case. We use it INSTEAD of giving him senna (laxative). When he gets it we give 2-3 healing teasp dissolved in hot water and it usually helps. If that doesnt do the trick then I will use senna syrup- hard to find- but will sometimes work.
When pooping stops (which it did this past Xmas 12/2012) and we have to start irrigating again we have found that two drugs really help. Vancomycin (abx) and Diflucan for 10/14 days. I dont like using drugs BUT I hate irrigating way way way more. So if I have to give these drugs once every year or two I am OK w/ that. They really work wonders for him.
He gets 11-12 hours of sleep every single night, even holidays, even vacations, even birthdays. He sits on the potty (and we have to tell him to go ) 3-4x per day. At least two of those times are 20-30 min w/ an electronic device in his hands. the really weird thing is he can hold his pee forever. He rarely says he has to go pee or poop, we MIGHT hear that from him once a week. His poop is loud, kind of loose and sometimes kind of explodes out of him (so it covers the entire potty). He finally graduated to the big potty a few mos ago. we found the little potty w/ his feet firmly on floor really helped him. Now he has a stool under his feet in case he needs help w/ pushing. The other weird thing is that he sometimes doesn’t know if poop has come out….maybe because he is distracted by cell phone games or maybe he just doesn’t feel it like we do?????
I think I covered it all. This might be my longest post ever!?!?!!!!!!!!!
Thanks for reading!!!